British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.
A mother whose son was diagnosed with spinal muscular atrophy (SMA) when he was ten days old has urged singer Jesy Nelson to ...
ATLANTA, Ga. (WRBL) — Jessica Blinkhorn is an artist and advocate for LGBTQ+, aging and disabled communities. The Georgia-based artist has been affected by the genetic neuromuscular disease spinal ...
Spinal Muscular Atrophy (SMA) remains a devastating neuromuscular disease globally, serving as a leading genetic cause of infant deaths worldwide. In India, one in 7744 babies are affected by SMA, ...
PENNSYLVANIA, USA — August is National Spinal Muscular Atrophy Awareness month. Eating, speaking, even breathing. These are things many of us take for granted, but for infants diagnosed with spinal ...
Jesy Nelson revealed her twin daughters have been diagnosed with spinal muscular atrophy (SMA) in an emotional video while ...
COMSTOCK PARK, Mich. — A West Michigan father is currently on an 80-mile bike ride all to bring awareness and raise money for his son and kids like him who are living with a rare disease. He's 13-year ...
James Ian, a singer/songwriter with spinal muscular atrophy (SMA), performed his song “Spaces” at the White House on Monday afternoon at an event honoring those living with disabilities. The event ...
Novartis is telling people living with spinal muscular atrophy (SMA), a rare neuromuscular disease, to “SMAsh” their limits in a recently-launched campaign. SMA is a rare genetic neuromuscular disease ...
Fashion nonprofit organization Open Style Lab teamed up with the spinal muscular atrophy community on a stylish and functional collection New York Fashion Week hasn't always been at the forefront of ...
Spinal muscular atrophy type 1 (SMA-1) is a rare genetic disorder causing severe muscle weakness from birth or early infancy, ...
CHESTERFIELD COUNTY, Va. (WRIC) — Spinal Muscular Atrophy (SMA) is a genetic disease that severely weakens muscles and causes developmental delays. It affects one in 10,000 American babies in the U.S.